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FA Patient Registry - what it is and how to join (AtaxiaUKonline) View | |
Friedreich's ataxia (FA) Global Patient Registry Tutorial (Friedreich's Ataxia Research Alliance) View | |
Patient Registries (MedNetSys) View | |
Building a rare disease patient registry--Sally Jeans (RareBeacon) View | |
Episode 14: Community Participation in Research (Friedreich's Ataxia Research Alliance) View | |
Understanding Allergic Reactions through a National Patient Registry | 2020 Research Retreat (FARE) View | |
PAANO MAG RENEW NG FA REGISTRATION 2024 PROCESS STEP BY STEP (Rocky Pitmalo tv) View | |
Patient/caregiver reported data: Genida registry (IDefine Europe) View | |
Patient Engagement - From Bench Top to Bedside (Rare Disease Report) View | |
Manchester FA Player Registration Guidance (Manchester FA) View |